MLD Support Association UK is very lucky to have a dedicated team behind us. Our six Trustees meet every two or three months and deal with the everyday running of the Charity, organising Conferences and Fun days, developing the Registry, and keeping the Website and information leaflets up to day. All are involved because they have a family member with MLD, or are supporting others with MLD. Our Scientific and Technical Advisory Panel have many years of relevant experience and are always willing to help support the Charity at Conferences, and by giving scientific input when needed. Our Patrons all support our aims and help where they can, but a special mention goes to Professor Timothy Cox, our “lead Patron”, who has tirelessly helped in all areas of the Charity – we are immensely grateful for his continued support.